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About EDS

American Journal of Medical Genetics: 2017 Papers

The Ehlers-Danlos Society

EDS Awareness: Free Webinars!

GeneReviews: Ehlers-Danlos syndrome, Hypermobility Type

General EDS Guidance

What Do I Do If I Suspect That I May Have an Ehlers-Danlos Syndrome?

What Do I Do Now That I Have Been Diagnosed With an Ehlers-Danlos Syndrome?

How Do I Organize My Medical Records?

How Do I Prevent Myself From Having to Go to the Emergency Department?

What If I Have to Go to the Emergency Department?

How Do I Cope?

Self Advocacy

Being Your Own Advocate for Your Rare Health Condition, By: Jon Rodis

Find the Right Doctor

NH List of Recommended Providers (On-going process)

Ellen Smith's Nationwide List of Recommended EDS Providers

New England List of Care Providers, By: Jon Rodis & Others

Managing Pain

EDS Specific Physical Therapy - Kevin Muldowney, Rhode Island (a two hour drive from Concord)

Healy Physical Therapy & Sports Medicine - Michael Healy, DPT, DOMTP, Rhode Island (a two hour drive from Concord)

Principles to Better Pain Management in EDS - Dr. Chopra

Postural Restoration

U.S. Pain Foundation

Coping

Laughter Therapy for Chronic Pain

How Pets Help People With Chronic Pain

If At Birth You Don't Succeed - Zach Anner

Medications & Supplements

GeneSight - Genetic Testing for Personalized Medicine Treatment

Support & Discussion Groups

Ehlers-Danlos Society Support Group & Community - Inspire

New Hampshire EDS Support Group

Books

Living Life to the Fullest with Ehlers-Danlos Syndrome - Kevin Muldowney, PT

Understanding Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorder - Claire Smith

Dietary

Pinnertest - Food Intolerance Test

Travel & Hospitality

Tips for Travelers with Disabilities by Rick Steves

U.S. Department of State - Traveling with Disabilities

Medical Cannabis

NH Department of Health & Human Services - Therapeutic Cannabis Program

Marijuana Policy Project

Prime Alternative Treatment Centers

Prime ATC - Financial Hardship Application

Healthcare Politics

New Hampshire Legislation

New Hampshire Senate

New Hampshire House of Representatives

Centers for Disease Control & Prevention - Opioid Prescribing Guidelines

New Hampshire General Court Streaming Media

New Hampshire General Court Links of Interest

NH.gov

Alternative Treatment Options

Acupuncture

Feldenkrais Method

Mindful - Taking Time for What Matters

What is biofeedback?

Find a Biofeedback Provider in Your Area

Disability

Social Security Disability

ServiceLink - Aging & Disability Resource Center

National Association of Disabled and Injured Workers

Disability Rights Center - NH

Research

ClinicalTrials.gov

Useful Products

IMAK Gloves & Ergonomic Products

Body Support Store

Aircast Boot Gate Issues? EvenUp!

Youth & Parent Resources

School Individual Education Plan for EDS

Blogs

Ellen & Stuart Smith's Pain Blog - Five Stars!

3 Things the Chronically Ill Wish Their Loved Ones Knew - Psychology Today

8 Things I Miss Most as a Result of Chronic Pain & Illness - Psychology Today

Crazy Chronic Life

Ehlers-Danlos Syndrome - The Mighty

Awakening Others About the Challenges of Having a Disability - By: Jon Rodis

Awareness & Activities

EDS Awareness Activities

Ehlers-Danlos Syndrome Proclamations

Other Resources

INvisible Project

Pain News Network

Jon Rodis - A Great Resource & Advocate

Rare New England

Intensity of Chronic Pain - The Wrong Metric? - New England Journal of Medicine

Donate to EDS with smile.amazon.com

National Organization for Rare Disorders

The Coalition Against Pediatric Pain